It's 7pm and the smell of pizza wafting from the Ronald McDonald family room is getting strong! I write this from there - a haven for families who have kids in ICU - think airport lounge and you're nearly there - comfy couches, free food and drink, magazines, tasteful 'elevator' music, wireless, phone, toys for kids, library and a floor to ceiling view of Auckland city and harbour. Is so good to have this space away from the medical side of the hospital, and to not have to think about shopping/preparing food.
But enough of this and on to what matters - Samuel. He had a good day! His kidney function is improving as his tests returned showing key indicators are lowering. He finally passed meconium through the stoma in his side (during the operation last Sunday the surgeon brought the healthy part of his bowel ou
t to the surface of his stomach) which the doctors were pleased to see. I got to wash him and then hold him! It was awesome! After a week of never seeing him awake due to sedation, it was so lovely to hold our crying squirming boy! Spending all day in ICU with 2 little babies in their little 'nests' it is strange how void it is of 'baby sounds' - just the beeps of machines and monitors. It took about 10 mins to get him to settle as it was a challenge to hold him so as not to cause him pain due to the many areas of discomfort he has... but with the help of Janice (very lovely and able nurse) we got there and I had a delicious 30 mins just caressing and loving our wee boy - it was magic.
Tonight Francis will sleep here and I'll head home for a night in my bed and to spend some time with Mum, before she heads home on Tuesday.
THE HOME FRONT
It's been a full-on week and we've only survived due to Nana & Grandad and Grandma moving in to keep the girls' routine ticking over. It's made the week bearable as we've not had to worry or stress about the girls. Quotes from the Candace about the week were, 'It's great having 2 Nana's around - we get to do whatever we want!'. She's no dummy! But the girls have had a special time with our parents and we are so thankful for their time, care and support at a difficult time.
The week has a been a steep learning curve for me in regard to medical jargon and now I am learning the art of computer blogging! So expect to hear more from me in the future as we use this blog as our main communication tool about Samuel. Writing blogs is as much for us as it is for you as we process and download all that goes on here each day. It helps us to remember and capture his daily progress and also makes us feel connected with the outside world. Knowing that people can log on and read about his/our day (if they want) is a real encouragement to us - emails and comments are lovely to get and bring a smile to our faces.
So from one rookie blogger, it's time to sign off and get some pizza before it's all gone. Best wishes, Shirl