Today Samuel had the standard 6 week immunisations - which he'd missed in his 6th week due to surgery, but he was well enough to have them today. This is a pre-requisite for him moving over to Starship - the children's hospital connected to Auckland City Hospital. He will be much more exposed to illnesses being in an open ward.
Today his surgical drain from his right kidney and fluid collecting bag were removed, so he has one less bag. His morphine was lowered again so he may hopefully be weaned off it fully tomorrow. All his various blood tests came back with mostly normal readings, which we're really pleased about. His calcium levels which were dangerously high on Friday (affects central nervous system) have reduced significantly since they made adjustments to his 'food' over the weekend, so they will be watching this closely along with his sodium levels. His liver tests have all come back showing good readings, since stopping any paracetemol infusions. So we are really pleased to see him responding so well to the changes. One of his lovely doctors made the comment today when speaking about one of his drug changes with the nurse, 'but this is Sam, he'll do the opposite of what we expect anyway!'. He really is a special wee boy who has taken a lot to figure out, but the team at NICU have been superb in working with him and trying everything they could to get him to this point.
Tomorrow Francis & I have a tour of 26B - the ward in Starship that Sam/we will be living in for the next amount of unknown weeks/months. It has been arranged to help prepare us for our next phase of life - we have been warned by many of the staff of the shock/adjustment it will be for us, especially after being cocooned in NICU for so long, where Sam has largely had one-on-one care and it is quiet and peaceful....so we will let you know tomorrow night if the shock is as bad as people have hinted at!
Sam still requires a little oxygen assistance, but they are going to try and wean him right down tomorrow and see how he goes. Otherwise, it's just letting him rest and waiting for the all clear from Starship.
Off to bed to rest before what could be our last full day in NICU - Wow, can't believe it's nearly here.... amazing.
with love, Shirl