Samuel's had a good couple of days, with him being alert, awake and happy for up to 1.5 hours at a time, so we've had plenty of cuddles and cooing!
His 'quiet' week has changed somewhat, with him now scheduled to have an operation on his right kidney tomorrow at 1.30 pm. He needs to have the catheter removed from inside his kidney and will have a new drain (ureterostomy) brought up from his uretor to the surface of the skin. This surgery is like his last surgery - dependent on what the surgeons find in theatre, but the above is the current plan. Today he had a kidney ultrasound and the surgeons were pleased that his kidney operated on last week, and the diversion, is working as well as they'd hoped.
So we would value your prayers for Samuel again, as he faces his 8th operation, anaesthetic and intubation. He was looking so good today, breathing on low-flow (off for a little time too and breathing all by himself!), comfortable and responsive, sleeping tonight with no concept of what his body must endure again tomorrow.
Sadly Jasmine, his big sister has developed a cough, so she has not been able to visit and have cuddles with her little brother, but we hope and pray she gets over this soon and will be able to visit on Friday, as she's really sad she hasn't seen him for 3 days. She has found a book of poems she is desperate to bring in to read to him - very sweet. The girls, especially since they've been allowed to hold him, constantly talk about him and include him in their thinking and lives, which is very precious to us.
We will blog tomorrow night with a progress report post op. 'Please Lord be with Samuel and give him peace and physical strength to recover well from this next op we pray. We love him so much, our hearts ache that we can't take away his physical challenges, but we trust him in your hands - his maker, who knows and loves him with an immeasurable love'.
With love and immeasurable gratitude for your love and support. Shirl