Monday, August 3, 2009

Monday Night

The Auckland skyline is my backdrop and Samuel slurping on his dummy is my background music! Samuel had an unsettled day, just grizzly and not happy to settle to sleep. He is now on continuous oral feeds, only 1 ml/hr, and every 4 hours they asperate him and remove around equivalent of 10 mls every 4 hours - so his stomach is creating plenty of secretions to digest the incoming, but doesn't seem to have the muscle action to send it south. So he gets uncomfortable and also full of air, and he doesn't seem to be able to burp.... so a grizzly day for him. But is hard to know what is just 'baby stuff' and what is a medical concern.

He seems to have the beginnings of a cold and is being suctioned through his nose to remove mucous, as it is affecting his breathing, so he has been put back on low-flow oxygen tonight as he needs a little assistance to help him over this blip.

His kidney are still draining well, but it seems the vesicostomy (bladder drain) has prolapsed a little again and causing him some discomfort.... so I will raise that with the surgical team tomorrow when they do their rounds.

So all in all just a day settling in to the ward and figuring out how the team here work - it is very different to NICU and will take a little to adjust to. The girls love coming up as there is a playground downstairs and they can cuddle their little brother freely... Today Anne (Nana) had her first cuddle with her grandson whilst I went downstairs and played with the girls.

Francis made it safely to Vientiane and will have a busy few days with his staff and friends, amidst jetlag and wishing he could be in two places at once. As you can tell Francis has the technical skills required to put photos in the right place.... I'm just pleased I managed to get them from the camera to the computer, so you will have to match them to the right paragraph!

I really enjoyed today - it's so lovely to be with Samuel and getting to know him. In NICU he was often so unwell that he was unconcious etc, but now it feels like I have precious time to get to know him, learn what he responds to, how to care for him etc, so I am really pleased I can be here with him and it is no hardship at all.... and the hospital food is surprisingly palatable!

Our big concerns whilst Francis is away is clearly for Sam to keep strong (beat this incoming cold he seems to have) and for the girls to feel secure and settled with their parents in 2 locations and with Anne & Rodney running the ship. It is lovely for me to be able to focus on Sam's care content and peaceful that the girls are in great hands.

With ongoing thanks, Shirley


Margo said...

It is so lovely to see Samuel's face with his beautiful dark eyes.
Praise the Lord for Rodney and Anne. Please say a BIG hi to them from us.
Prayers for all of you as you go about your week in different places, and also for Samuel to be rid of his cold.
Love Margo & Tim

Joanne said...

Hey guys, Great to read that Samuel is doing so well. Since we met at the welcome to Urban night I have been away in Samoa (and lost my phone in the process) but I am back in Auks now and have my phone (0211232202)so the offer remains - if you need anything just let me know! Sending you heaps of love

Anonymous said...

Hello! Samuel is looking so grown up. He is such a beautiful boy and it is nice to see him without so many tubes on his face.
Praying that the Lord will continue to keep and sustain Samuel, along with you all. Also that Francis will return home safely very soon.
Love Steph (a friend of Aria's)

Rachel said...

Well done Shirl for a great blog again! Thinking and praying for you all this week in your different locations with different demands. Great to see Samuel looking so well and great that Anne & Rodney can be around to help look after Jasmine & Candace. Lots of love Rach

Anonymous said...

Shirley...your blog is lovely and you've done well...thanks's lovely to be walking this with you. We've just had a young person pass away (and I'm not saying this about Samuel) but this poem was on there and I was praying it may encourage you...especially on the tough days :) We are continuing to uplift you each day and seek God's blessing on your lives.

With love
GOrdon, Coralie & family

I'll lend you for a little while, a child of mine, God said
For you to love him while he lives and mourn for when he is dead.
It may be for six or seven years
Or twenty two or three,
But will you, until I call him back,
Take care of him for me?
He'll bring much charm to gladden you..
And should his stay be brief,
You'll have such lovely memories as solace for your grief.

I cannot promise he will stay - since all from earth return
But there are lessons taught down there I want this child to learn.
I've looked this wide world over
In my search for teachers true
And from the throngs that crowd life's lanes
I have selected you.
Now will you give him all your love..
Nor think your labour vain,
Nor hate me when I come to call and take him back again?

I fancied that I heard them say
Dear Lord, Thy will be done..
For all the joy Thy child shall bring
The risk of grief we'll run.
We'll shelter him with tenderness
We'll love him while we may
And for the happiness we've known, forever grateful stay.
But should the angels call for him much sooner than we'd planned
We'll brave the bitter. bitter grief and try to understand.

Anonymous said...

Annie, how lovely to see your smiling face as you cuddle your darling moko. What an awesome person you are Shirley with the energy you find to write about your special "taonga" Samuel in between all that is going on with him. Same with Francis. May you all continue to draw strength from each other through that special Man above. Your incredible journey has become OUR journey, thanks to your amazing journalistic skills that have made it easy for all of us to understand what Samuel and yourselves are going through. But most importantly, thank you for sharing your "little warrior" with us all. He has become OUR "baba" too and we will continue to keep you all in our prayers and thanks to you, watch his progress. Baby Samuel has inherited some of his Nan's beautiful looks. There is definitely a likeness there. How lucky for the girls to have their Nan and Grand-dad look after them. They are definitely in safe hands.

Rest well Shirley. Kia kaha Francis while you are away from your family.

A special kiss for Samuel from us all in Palmerston North and Waitotara. (Shirley & Lorna)

Francis and Shirley said...

Gordon and Coralie, what a beautiful poem that encapsulates it all! Thank you so much. Shirley

Bron said...

An amazing poem - I'd read it again if I could stop crying!!

Anonymous said...

A beautiful poem indeed. It made us cry too.

Shirley & Lorna