The Auckland skyline is my backdrop and Samuel slurping on his dummy is my background music! Samuel had an unsettled day, just grizzly and not happy to settle to sleep. He is now on continuous oral feeds, only 1 ml/hr, and every 4 hours they asperate him and remove around equivalent of 10 mls every 4 hours - so his stomach is creating plenty of secretions to digest the incoming, but doesn't seem to have the muscle action to send it south. So he gets uncomfortable and also full of air, and he doesn't seem to be able to burp.... so a grizzly day for him. But is hard to know what is just 'baby stuff' and what is a medical concern.
He seems to have the beginnings of a cold and is being suctioned through his nose to remove mucous, as it is affecting his breathing, so he has been put back on low-flow oxygen tonight as he needs a little assistance to help him over this blip.
His kidney are still draining well, but it seems the vesicostomy (bladder drain) has prolapsed a little again and causing him some discomfort.... so I will raise that with the surgical team tomorrow when they do their rounds.
So all in all just a day settling in to the ward and figuring out how the team here work - it is very different to NICU and will take a little to adjust to. The girls love coming up as there is a playground downstairs and they can cuddle their little brother freely... Today Anne (Nana) had her first cuddle with her grandson whilst I went downstairs and played with the girls.
Francis made it safely to Vientiane and will have a busy few days with his staff and friends, amidst jetlag and wishing he could be in two places at once. As you can tell Francis has the technical skills required to put photos in the right place.... I'm just pleased I managed to get them from the camera to the computer, so you will have to match them to the right paragraph!
I really enjoyed today - it's so lovely to be with Samuel and getting to know him. In NICU he was often so unwell that he was unconcious etc, but now it feels like I have precious time to get to know him, learn what he responds to, how to care for him etc, so I am really pleased I can be here with him and it is no hardship at all.... and the hospital food is surprisingly palatable!
Our big concerns whilst Francis is away is clearly for Sam to keep strong (beat this incoming cold he seems to have) and for the girls to feel secure and settled with their parents in 2 locations and with Anne & Rodney running the ship. It is lovely for me to be able to focus on Sam's care content and peaceful that the girls are in great hands.
With ongoing thanks, Shirley