Today after his TPN and milk line were disconnected it dawned on me that Sam was free as he didn't have oxygen tubes - so I picked him up and walked up and down the corridor for the first time..... it was soooooo00000 cool.
Up until tonight Samuel has been having 4 hourly checks of his urine output, colostomy bag and nappy weighed, even through the night. As he is getting bigger and stronger to have it done so regularly is not important. As long as an accurate 24 hour fluid balance is kept that is sufficient for the Drs/dietician to calculate the right fluid input for his nutrition.... so tonight for the first time we're going to leave him alone uninterrupted and see how he goes! He has a colostomy bag, nappy and catheter bag on anyway, so we will just empty and weigh them in the morning. So I'm off to try and settle him for our first nights full night.
Francis has a big day ahead with the moving company packing up our house in Laos... with a mouse. The girls are loving playing with their friends but it is dawning on them farewells are getting closer. It will be hard for them, but also so important for now. I've missed them all so much, but not sure in what emotional state they will be in when they return.... but we pray for wisdom as to how to work with them so they can work through all the turmoil inside their little hearts. It will be so lovely to have them back!
Off to see if Sam and I can't get a full 8 hours in a row.
'Thank you Lord for real progress with Sam this week - for his happy and content nature and for helping his lungs develop - it's so awesome.... we're so stoked and grateful to you. Please keep Francis, Jae and the girls safe as they spend their last 2 days in Laos. Thanks that none of what is going on is unknown to you and we ask that you help the girls to deal with the sadness of saying goodbye to their dear friends and life in Asia for now.... but help them to be excited to be back as a family and to see their little brother. Thank you we have a family that we all love. We pray for the desperate people in Samoa and Indonesia that lost theirs in a moment - bring them comfort as they mourn and rest from their fears as they sleep tonight'.
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7 comments:
It's so lovely to catch up on your blog every few days. I am so thrilled for you that Sam is progressing so well, your son is just beautiful and such a determined little guy. Hope your next few days continue to be lovely whilst you await the return of the rest of the team! Keep you all in my thoughts, Lisa Robertson
Wonderful, exciting news! I look forward to seeing the pics with eagerness!! Thank you God for the amazing progress in Sam. I pray that he continues to do so well. Love and hugs x
I hope you got a great sleep last night. I love catching up with your news through your blog - thanks so much for sharing all this with us. I'm so proud of Samuel breathing on his own - he's a big boy now :) I hope & pray that the rest of your week goes well and that you are refreshed for when your family returns. We are all thinking of you. Big hugs and loves, Inez. xx
How exciting to be able to carry him for a walk!! Also for him not to need his oxygen tube! What a little Trooper Sam is :)
Looking forward to hearing about the sleep too!
Hope everything is getting done in Laos and that it isn't too upsetting for the girls.
Lots of love xx
Janice & etc's
Wow, 4 months! Way to go, Baby Samuel!! Kia kaha, pepe! Man, how we take for granted being able to pick our babies up 'cord-free' - so glad you got to do that yesterday, Shirl. Things sound so good. We pray for the rest of the family as they come home too - so good that the girls get to say their farewells thenselves.
Love to you all from us.
Bron and the boys xxoo
That is great news. I caught up with Amy today at MOPS and we remembered you of course! We were sorry that Francis and co could not stay in Bangkok for a few days break and for a catch up. Life seems to hurtle along for us at NIST and in Bangkok. So glad about the good news. Glenn off to India leading pro-development workshops tonight for the week.. Cheers For Now. Marianne and Boys xx
I am so happy to hear of Sam's great progress and being unattached to the oxygen - how exciting! I love that you were able to walk up and down the hall with him.
All these little steps and relaxing of strict regimes are part of becoming more normal! (well your special kind of normal!) Take each little step forward as a huge positive move for little Sam.
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