It's been a busy 2 weeks for Francis & Anne (Nana) as they've held the fort whilst I've been sick. We couldn't have gotten through without Anne staying and doing her magic with Sam and the housework. Francis did a brilliant job of caring for Sam and is as confident and capable as I am, so it's great to be able to rely on each other, but it did show us that there isn't much slack should one of us be sick, or indeed when Francis gets work and I get sick. So we're thinking and praying for who would be the right person to train up as a back-up for his TPN. This is a full sterile technique - it's not actually that hard (clearly - we've both learnt it!), but just has to be thorough and methodical.
We've had a great week catching up with friends (it's summer holidays), bbq's and picnics. I actually find the holidays harder than normal term time, as the girls are keen to get out and do stuff, but it's just really hard to have quality time to do that, virtually impossible with both Francis and I as Sam needs attention. I have felt a bit down as I'm feeling torn between wanting to just hang out with the girls, but being distracted and with short windows of time. Any given day this week we have had 3 different visitors to see Sam, as well as phone calls. Yesterday it was the social worker, followed by the Stoma Nurse, followed by the weekly HCN (Home Care Nurse). The day before that it was the oxygen delivery guy, followed by the occupational therapist, followed by the TPN delivery guy..... it's all necessary and important, but some days I just want to be a hermit and scream, 'go away and leave us alone' and just be us.... but I realise that achieves nothing and are having to learn to re-prioritize life for us. 'Normally' I used to think it was so important the girls made there beds, had a clean and tidy house, laundry on the line etc... then when all that was done we could go out and do something. That doesn't really work for us anymore, as the free time we used to have may be when health visitors are here and the girls end up being at home all day and missing out on any time with us.... so we are learning to look at the clock, factor in when people will be here and demands put on us by Sam's needs and then forcing ourselves to ignore the dishes and mess and be engaged with the girls. It doesn't sound that major, but it's an adjustment for us all.
Another major event on our radar is looking for a new home for us to re-locate to in March, as our wonderful refuge will be being renovated. So we are putting feelers out for a 3/4 bedroomed home to rent, hopefully in one of the suburbs around here so the girls can stay settled in school.
We are SO looking forward to our holiday next week - a week at the beach about 40 minutes from here... without hospital appointments or medical visitors.... just US! Hooray.
Ok - novel over, we're happy and well, encouraged and thankful to God for His looking after us and looking forward to the beach!