Hi guys, this is great news, but of course the question about his lungs remains; may there be a solution, healing soon. Sorry for no communication, we follow blogs and pray. shirley, your walking in Sam's shoes and so into the shoes of others in pain was GREAT. Thanks so much for sharing so much. Praying for you all with the move - and as ever, look forward to the next update, you are making this work so well. Love, hugs and prayers, Clare & Dickon
i could feel the relief in the blog. Great that this is eliminated, we pray the doctors will be able to find out what is the problem with the lungs, or maybe they are just taking longer to develop. Enjoy the new place once you recover from the packing and unpacking! continue to pray for you guys. Lots of love MERRW?
Just caught up with the last couple of updates. Wow congratulations on a negative result for cf, that is one big one to cross off the list. Here's hoping they find a cause which is treatable and more bearable for you. Best of luck with moving home!
Francis, Shirley, Jasmine (8yrs) and Candace (6yrs) were living in Laos as a family when we discovered Shirley was pregnant with our first boy. However, the 20 week scan revealed problems with his bladder and kidneys which were grossly inflated with urine that wasn't draining through the urethra. Doctors at Auckland's Starship Hospital advised us to return to New Zealand where treatment could be provided for this congenital anomaly. We returned to NZ in March 2009, and Samuel James Davy was born on 6 June. He was diagnosed with MMIHS (see link below) - a very rare condition which means his intestine is under-developed and unable to absorb and process food as normal, while his bladder and kidneys are enlarged and poorly formed. So Samuel has been on intravenous nutrition known as TPN (see link) since birth, which runs for 18 hours per day through a central line and involves sterile procedures to connect/disconnect the feed. He has a stoma which empties waste into a colostomy bag, a hole in his uretos to drain urine from his left kidney, and a hole directly into his bladder to drain from the right kidney. Catheters are inserted into both drainage points every four hours to drain his urine. He also has a 'GJ' tube which runs through a hole in the stomach and down into the small intestine, through which he receives gradually increasing amounts of milk formula using a continuous feed pump. His liver was also affected but is now functioning normally, and the kidneys are currently functioning adequately despite their damaged state. Samuel spent 4.5 months in hospital from birth and underwent 9 operations to his heart, bowel, kidneys, bladder, and stomach before he was discharged and moved home on 28 October 2009. Our family have settled in Auckland, New Zealand - Jasmine and Candace attend the local primary school, Francis has resigned from his job managing a rural development program in Laos, and is now working for World Vision New Zealand while Shirley is caring full-time for Samuel at home, with close support from family, Home-care assistants and Starship hospital.
Prayer Requests
For his central line through which he receives intravenous nutrition to remain free of infection
For Samuel's kidneys to continue functioning well despite their damaged state
For Samuel's liver function to remain strong despite the risk of damage from the intravenous nutrition
For wisdom for the doctors to know how to treat his complex condition
How to write a comment (instructions)
1. Click on the grey word 'comments' at the bottom of the post
2. Write your comment in the box provided
3. Click on 'Name/URL'
4. Type in your name
5. Click on 'Publish Your Comment'
6. Your comment will then be at the bottom of the list of comments
7. To return to the home page click on 'Samuel James Davy' at the top of the page
16 comments:
H-A-L-L-E-L-U-J-A-H!!
YES YES YES!!!!!!
PHEW :)
Thank you God, you are GOOD.
Great news. Happy shifting with that relief :)
God bless
McLays
We are so pleased - we prayed for you all this morning; great to be able to tell our girls how God has answered.
Good news indeed. Best wishes for the move.
Love RAewyn and Andy
That's fantastic news! Praise God!
That is great news, Praise God
Wowl, just read your 'bog' :), such amazingly good news. Thank you Lord. 'O' for awesome. Love, Fi
Hi guys, this is great news, but of course the question about his lungs remains; may there be a solution, healing soon.
Sorry for no communication, we follow blogs and pray. shirley, your walking in Sam's shoes and so into the shoes of others in pain was GREAT. Thanks so much for sharing so much. Praying for you all with the move - and as ever, look forward to the next update, you are making this work so well.
Love, hugs and prayers, Clare & Dickon
Sooo pleased to hear that!! xxx to you all - the Crumps
i could feel the relief in the blog. Great that this is eliminated, we pray the doctors will be able to find out what is the problem with the lungs, or maybe they are just taking longer to develop. Enjoy the new place once you recover from the packing and unpacking! continue to pray for you guys. Lots of love MERRW?
Praise the Lord...I can imagine the relief! Glad you have done the move now and you can set about making your place a home...
Lisa
whoop whoop! thank You Lord... x x
Just caught up with the last couple of updates. Wow congratulations on a negative result for cf, that is one big one to cross off the list. Here's hoping they find a cause which is treatable and more bearable for you. Best of luck with moving home!
yay :)
is this not God's doing?
Post a Comment