Wednesday, August 4, 2010

Good and not so good news

We got the call yesterday from the Lung specialist to say that Samuel has been given the green light to come off oxygen! They were happy with his oxygen tests a few weeks ago which showed he is coping well enough on room air during the day and night, so that will make a huge difference to our daily life not having to manage multiple oxygen cylinder deliveries/pick-ups and transporting wherever Samuel goes.

I returned home yesterday lunchtime and went straight up to the hospital to see Shirley and Samuel. Samuel was very cuddly and seemed happy to see me again so I enjoyed an hour there before having to leave to pick up the girls from school and take them to piano lessons.

The latest news is that it seems Samuel has an E-Coli urinary tract infection that has spread throughout his body including his central line. Every day he is having blood tests to see if the bugs are still growing and the one yesterday showed it is still present in his system. So he's on IV antibiotic 3 times per day and they think he'll be in for at least another 2 weeks. He continues to spike high temperatures requiring a cool bath and fan to cool him down, which were occurring every 6 hours but are now averaging every 12 hours so that's a good sign. After a good nights sleep at home, I'm heading up to the hospital now to relieve Shirley who hasn't been home since Saturday when Samuel was admitted and hasn't seen the girls since Sunday (they're not allowed up there because of concerns that they may spread chicken pox after Jasmine's recent outbreak). The next two weeks are going to be a bit of a juggling act with one of us having to be with Samuel at all times, and me having to go to work and look after the girls, but we'll survive.

Thanks for your prayers for Samuel during this latest hurdle, at one point he was looking so sick and mottled that Shirley wasn't sure he would pull through but he seems to be improving gradually so hopefully he's turned the corner and is on the mend again.


Jill said...

Hello Francis and Shirley

You don't know us, but we have been following Sam's progress now for quite a while and praying for you all - we first "met" you through Aria's blog. So many of your comments as you share your daily situations are such an encouragement to us; we have really been blessed to see your trust in God in such difficult times, and we pray that you will know His enabling, His strength and His peace that passes all understanding in every circumstance. Your beautiful boy is a blessing to us, as well as to you!

The Doughertys said...

Glad that you are home safe and sound Francis and I am sure your wee man was very excited to see "Dadda", as with your girls. We pray you will cope really well in the next few weeks and that the strain is not overwhelming for you all. You are constantly in our thoughts. It amazes us how you can blog when life seems really difficult. We want to thank you so much for your thoughtfulness and your willingness to share with us. Much love, the Doughertys

Anonymous said...

Eeeeek - I always cringe when I hear the word E-Coli. I had an E-Coli bacterial infection a few years back - had to have emergency surgery, 4 nights in ICU and 7 nights in ward. And that was grown up me, not wee Samuel. Eeeek - as if Samuel needs anything else to deal with (and you for that matter). So glad he is in hospital to get all the appropriate treatment. Praying for you guys. It's HUGE what you have to do EVERYDAY. Great to hear about Samuel's oxygen levels and great that you are back home Francis. Take care Davy family.
Lots of Luv Margo xxxx

jodie said...

Haven't dropped a note to you for ages - but still thinking of you all, checking in on the blog often and continuing to pray for Sam.
Jodie and Luke xoxo

Anonymous said...

Hi guys,
Thinking of and praying for you all at this difficult time, glad to hear Sam is slowing improving. Jordan and Cooper say a big HI to Jasmine and Candace,
All our love, Sue and Peter