So on Wednesday we left the ward and got the lift from level 4 to level 2 and became a 'day patient'. Sam had his blood test, we waited 2 hours for the results, we had the infusion and came home.
On Thursday I dropped the girls off to school, bundled Sam in the car, drove to Starship, had a blood test, waited 2 hours for the results, didn't have the infusion as levels too high, got back in time to get the girls from school.
Today, I dropped the girls off to school, bundled Sam in the car, drove to Starship, had a blood test, waited 2 hours for the result, did have the infusion, got back in time to get the girls from school.
Tomorrow - we DON'T need to go to Starship! I'm so excited about this on many fronts:
1. The roads are going to be chaos around the hospital as part of the motorway is shut for 2 days whilst they move a new road into place.
2. Sam's urine sample came back clear, so gentimycin not needed.
3. I'm totally over spending what seems like my every waking moment in Starship.
The medical team have decided to put Sam back on prophylactic antibiotics to hopefully stop his run of UTIs.
On another note, his GJ tube has started gushing fluid/mucous/milk all around the tube. Hard to explain, but the Doc took a look today and spoke to radiology. Hopefully on Monday we will get back in so this attachment can be looked at, as it may have moved, or may need replacing. The downside is that Tuesday is the start of a nationwide strike by radiographers, which could go on indefinitely - they have been striking all week at Starship, so it's having a huge impact on the whole hospital - cancelled surgeries etc, and if Sam needs something sorted he could be impacted. At the moment we are trussing him up like a chicken - we put a wad of pads over the hole and then put a stretchy corset thing around his tummy to hold it in place. We are using barrier cream on his torso as we don't want him to have issues of broken down skin due to stomach acid.
I don't know if it's the end of winter, or just getting a bit fed up, but it would be good to get back to the routine of life at home that we knew for a whole 10 weeks. It seems to just be one thing after another, but right now, today Sam is happy and asleep..... and we just take it a day at a time......