Well it's new year's eve and we've just been given clearance to go home! It will be so nice to be home after this 2 week stint. We are hoping and praying we will be home longer than last time (2 days) and the time before that (4 days).
It seems his temperatures may just have been his auto-immune system fighting off the cold he had/has, but as he's not had a temp for 48 hours and none of his cultures are growing anything, we can head home.
I'm too tired to think about what's happening tonight, I just want to get home and be a family again, I still have to pack up my room and make the trips up and down to the car, sort out meds, drug charts etc etc etc.... Transition day home is always busy and stressful with unpacking and getting Sam up and running on the home systems again. Holidays are always the hardest I find - the helpers that come to help out are on holiday, so not only do I not have any of the usual help, the girls are off school and needing time and attention, keen to do normal kid stuff like picnics, beach, riding bikes etc.... all which is that much harder to organise around thinking about meds and Sam's routine..... but hopefully we will manage to squeeze in some 'normal' fun things, although right now all I want to do is go to bed to recover from this stay.
I try to remember at times when I'm 'flat', the amazing kids on this ward that struggle each and every day; The smiley 13 year old with no kidneys that relies on haemo-dialysis every 2 days in order to live - and she beats me hands down at Mancala!; the beautiful 11 year old girl recently diagnosed with Cystic Fibrosis that struggles to breath with the small part of one of her lungs that isn't damaged; the 9 year old boy next door that up until a few weeks ago was up and running around, stricken down by a flu that has left him completely paralysed.....and the list goes on and on.... I struggle as a carer and the limitations that has on us as a family, but the happy kids on this ward struggle to breath and function and I have so much to learn from them about making the most of every moment.
Thank you one and all for your care, interest, prayers and practical support over this past year. We are constantly humbled by the support we receive in so many forms, and as we get ready to embark on another year, we are so grateful to God for sustaining Sam and us, knowing that He will and can do the same next year.
May you all have time this holiday period to reflect on the amazing gift of life and health and may you know peace and joy whatever your circumstance.
X Davy Family