Friday, January 21, 2011

Sam has a new room-mate.....

...and it's his sister! Today has been quite a day, and without going into details, it involved Jasmine (9), a door, a severed toe (2nd from left), an ambulance, surgery re-wiring said toe back on and now Jasmine is in the room next to Sams for the night. I am totally fine with Sams bits and holes and lines, but severed things and blood and toes in fridges is just a part of nursing I don't do well! It sounds so neat and easy in a few words, but it was awful and messy and frightening and upsetting, but we all made it to the end of the day. Even amidst the chaos we saw cool things that we thank God for - the first surgeon said they wouldn't bother re-attaching it but then he came back and said there were 2 consultant surgeons on that wanted to try. The anaethetist stayed on later than she was due to do her bit. The surgeon said 10 - 20% don't 'take', but it's worth a shot, even though they wouldn't normally, but the toe was in good condition and time was on their side. We are so grateful that they were willing to try. As it's only a minor toe with much less function than say her big toe, it won't have much impact on her physically if it doesn't take, but we'd really love it to 'take'..... please Lord, help it re-attach and heal.

Sam is still hitting hi temps and intermittently miserable, then happy. His various cultures have grown 2 bugs in his central line, so we are just waiting a bit longer to see what really grows before they possibly change his drugs. He had a few trips down to CED in between his antibiotics and other cares, to spend time with his sister.

So he is in his usual holding pattern and will be in hospital into next week. We chatted today about how often he is getting these infections and they are looking hard into if there are any changes to medications that can help. The bugs he grows they know are bugs from the gut and not the urine, so it's good to have it narrowed down. The bugs somehow leak/travel into other parts and the TPN line is a great place for them to camp out as it has sugars and lots of yummy things bugs like, hence the line infections. So they're thinking hard and researching to see if there isn't anything more that can be done, yet balancing up that with the risks of keeping bacteria down which can mean fungal infections can start and they are really a whole other awful that we don't want.... so it's been a reassuring day on the Sam front knowing the team are really working hard for him, even though he is struggling on with his battle of the bacteria in his system, which is awful for him.

Tomorrow Jasmine will be discharged with antibiotics, pain killers and her foot cast for the next 6 weeks and I will take her and Candace away for the weekend.....which has been planned for about 8 months and there is no way we're missing it! Francis is going to hang with his boy and we will be praying for Sam to get stronger and stronger.

The adrenaline for the day is fast wearing off, but we know the prayers of many (I text our prayer team from church a lot!) and the practical support has helped us yet again.....tonight our lovely friends brought dinner up to hospital and been a wise and listening ear to our heartache, Aunty Tors has run around after Candace and has her for the night, Suga and Amanda were involved in the rescuing of various people and Debs has dropped in a meal.....and the list of kindness just keeps on flowing and we are so humbled and grateful....yet again....

Much love and gratitude X

6 comments:

Jill said...

Oh, Shirley - I know what you are saying about the bits you don't do well! I was a nurse, have seen plenty of fairly drastic things over the years, and have dealt with lots of medical stuff with daughter #4 , who has special needs and lots of associated issues. But when my perfect baby #5 had the door slam on her thumb at 18 months, and the nurse at A&E called out "amputation" to a colleague when we rushed in, I lost it! And for months I couldn't stop reliving it. She had surgeries etc, and the upshot was us saying "well it could have been worse things, and so what if she doesn't grow up to be a piano player". She's now 15, and about to sit her Grade 8 piano exams, with a "funny" little thumb!
I'll be praying for you - hope you have a great time away, and that Jasmine has a smooth recovery.

Anonymous said...

Please tell Jasmine she doesn't have to do such awful things to get attention! We love you guys. CHIN UP JAZZ! Glad you all get a special weekend away, wish I could send her a special book for the trip. She tough! And equally praying for Sam.
Anna

Anonymous said...

Please tell Jasmine she doesn't have to do such awful things to get attention! We love you guys. CHIN UP JAZZ! Glad you all get a special weekend away, wish I could send her a special book for the trip. She tough! And equally praying for Sam.
Anna

Kimberley Parker said...

We read and pray from afar Francis and Shirley. Some days I am certain it feels you are not in Kansas anymore .... but our God is good and He is able. So we keep praying. With love Kim & Tim

Anonymous said...

Sometimes life Sucks!Gosh - it can only get better!
Love and Prayers for you all.
Marianne xxx

Anonymous said...

PS... I think it is quite validated that you pour yourself an extra large glass of G and T! Not so holy in my advice but I know but will be spirit filled!