Sam is still hitting hi temps and intermittently miserable, then happy. His various cultures have grown 2 bugs in his central line, so we are just waiting a bit longer to see what really grows before they possibly change his drugs. He had a few trips down to CED in between his antibiotics and other cares, to spend time with his sister.
So he is in his usual holding pattern and will be in hospital into next week. We chatted today about how often he is getting these infections and they are looking hard into if there are any changes to medications that can help. The bugs he grows they know are bugs from the gut and not the urine, so it's good to have it narrowed down. The bugs somehow leak/travel into other parts and the TPN line is a great place for them to camp out as it has sugars and lots of yummy things bugs like, hence the line infections. So they're thinking hard and researching to see if there isn't anything more that can be done, yet balancing up that with the risks of keeping bacteria down which can mean fungal infections can start and they are really a whole other awful that we don't want.... so it's been a reassuring day on the Sam front knowing the team are really working hard for him, even though he is struggling on with his battle of the bacteria in his system, which is awful for him.
Tomorrow Jasmine will be discharged with antibiotics, pain killers and her foot cast for the next 6 weeks and I will take her and Candace away for the weekend.....which has been planned for about 8 months and there is no way we're missing it! Francis is going to hang with his boy and we will be praying for Sam to get stronger and stronger.
The adrenaline for the day is fast wearing off, but we know the prayers of many (I text our prayer team from church a lot!) and the practical support has helped us yet again.....tonight our lovely friends brought dinner up to hospital and been a wise and listening ear to our heartache, Aunty Tors has run around after Candace and has her for the night, Suga and Amanda were involved in the rescuing of various people and Debs has dropped in a meal.....and the list of kindness just keeps on flowing and we are so humbled and grateful....yet again....
Much love and gratitude X