Friday, March 18, 2011

End of a good week, start of a gr8 one....


Finding this rotting infection in Sam's Gj tunnelling is really so great, it explains why he's been so up and down for so many months now and it's a relief to know that the infection is on the way out. We went back in to Starship today and the site looks good - Sam is not cranky when you touch it and there was no gunge to be seen, he doesn't smell (he was smelling foul) and the leakage is virtually non existent now. The hole is looking much smaller and fitting well around the tube, so it wasn't felt anything more than twice a day silver nitrate sticks was needed to help it heal. This is a painful thing and I feel mean burning my son, but if it is the best of two evils it needs doing. He is getting very strong and can grab and pull and also kick and wrap his legs around you all at the same time, so it's a bit like putting stockings on an octopus, but the girls are getting adept at distracting and entertaining and restraining him.


So it's been a good week, but I'm looking forward to the next one even more! On Sunday night it is my turn to head to the airport as some very dear friends have made it possible to spend the week with them in Hong Kong.... so Sunday lunchtime Francis returns from Bangkok and Sunday night I fly to Hong Kong! I've spent the week sorting out meds, writing lists, throwing off emails chasing up appointments, phoning agency nurses etc etc and with the cause of Sam's pain and misery found I really feel I can go and relax and enjoy being their. This is only possible because the small army of carers, home nurses, hospital staff and friends are capable and caring and I totally trust them with Sam......and Francis will be overseeing it all and it is lovely to see him care for his little boy....he is quite an amazing nurse...but of course I won't be seeing him as I will be eating dim sum in Hong Kong harbour after a foot massage in some bustling alley somewhere.... and 7 nights of sleep in a row will be truly magical. I'm allowing myself to feel excited now, especially as Sam is doing well again, although I know I will totally miss him and the girls and Francis. I'm also a little nervous as whenever we've travelled in the past I've just showed up and Francis takes care of the tickets/passports etc...but this time I shall have to take my brain as well.... but I'm looking forward to turning it off once (if!) I arrive and not be thinking about meds and TPN and blood results and and and....



So I'd better go and pack, empty my handbag of stray colostomy bags and feeding tubes to make room for my passport!

3 comments:

Anonymous said...

Such great news! I've been away for the week so had a bit of catching up to do.
Shirley, have a TERRIFIC time in HK!!
Keeping you all covered in prayer :)
Yolanda

Anonymous said...

Praying for you all, Love you ..Rosanna...

Anonymous said...

Love the family photo! Francis, it looks like you have a bit of a snarl happening!!!!
Glad you had a happy birthday Shirley
Margo xxxx