Sunday, April 3, 2011

Bird? Plane? No it's Super Sam!

Well the week ahead is uncertain, so we wait to hear what the Drs and surgeons have to say tomorrow. My understanding is that they want to do 4 surgical things in the one operation, so he only is under GA once. They plan to surgically close the GJ hole (has shrunk but still leaking), insert a new GJ, close up the ilieostomy and open a new stoma much further down. So his little tum is going to be sore but it really seems like progress.

His TPN has been increased but he is also having continuous fluids alongside this and his meds have been modified and is only on 2 that are given by IV. So these 2 factors are what are keeping us here whilst we wait for surgery. The hospital is splitting at the seams, so we wait for when they can operate on Sam. We know that many other children were delayed their surgery when Sam was very small and acute, so we totally know they are doing their best and we will be seen when it's possible and being weighed against all the other cases. It may happen this week, or it may go onto the next, so we wait patiently, glad that Sam is so happy and well in himself.

The plan is that I can still do the school run by escaping from Starship each afternoon with Sam, so hopefully that will mean life is almost normal for the girls, before I drop them at their Aunties to sleep and bring back Sam for his TPN at 6, as Francis is in Australia this wk.

Sam didn't get the memo about daylight saving and sleeping in an extra hour this morning, so I'm looking forward to an early night to catch up on the 5am start!

5 comments:

The Doughertys said...

Hi guys, have just caught up with all your goings on as we have been in Australia for two weeks for the twins 10th birthday. So, so cool that you got to go to Honkers with the Cairns. What a timely blessing that would of been for you Shirley. O for awesome. So neat that Sammmy is better in himself and there have been improvements. We will continue to pray for him that all goes well with his surgery and that he comes out of it much, much better off. All our love to you all. Fi, Col and kids

The Doughertys said...

Have been reading a great book which you may have read already....by Philip Yancy called "What Good is God". As Ive been reading it I have been thinking of you. Its a great book if you like reading. Much love, Fi

seamus said...

hi there shirley. great superman pic... sam's looking great! Guess what! I'm going to be in Aukland in June doing some training with the WV office there. Would be great to come and see you guys again and catch up. Hope all goes really well this wee with sam. Love. Seamus....

Francis and Shirley said...

Thanks Fi for the recommendation. I love Yancy! I'm reading another one of his at the moment, but hadn't heard of this one.... will definitely stake it out. It was a FAB week in Hotel Floating Cairns... very cool. Love you Col and the kids and glad you had such a fab break away.

Francis and Shirley said...

Hey Seamus, we would love to see you in June... you can even stay, we have a guest room....it comes with mandatory ear plugs! Love to Billie and kids. X