Surgically they are happy with his recovery, with all 3 sites (central access wound, ilieostomy and GJ) healing nicely and that he is pain free. So we are not required to be in hospital for recovery BUT we have now been handed back to the Gastro team for them to figure out Sam's nutrition, inputs, outputs, home meds etc. Sam does need to have his current G tube switched to a GJ tube. This is normally done in radiology but it can't happen for atleast another 3 to 4 weeks to give the new channel a chance to heal. This means we can't start enteral feeds or give him medicine via this route, although some of his meds are not required when not feeding as they aid gut motility etc. Currently he is getting all his nutrition from TPN over 20 hours. So some clarity on his fluid balance/nutrition needs to happen before everyone is happy to send us home.
Tomorrow we may migrate back upstairs if/when there is a room, but for now we are still on the surgical ward.
With school holidays fast approaching it would be great if we can get sorted and home in the next couple of days.... so we wait and see what tomorrow holds.
Sleep well. X