Tuesday, May 31, 2011

My last week as a one year old!

Hi there - my name is Sam, Sam Davy and I've given up on Mum and Dad writing a blog as they seem too busy sorting out our new house to sit down at the computer! Dad's up a ladder looking in the spouting and Mum is busy making a pinata for my sisters' birthday on Friday... don't they know it's all about me! So I'm going to write a blog as I have so much great news.
Firstly this is my last week as a one year old. On Monday it is a holiday in NZ because of the Queen having a birthday, but really I think it's because it's my birthday! Mum and Dad seem a bit too tired to do much so we're just having family around on Sunday for afternoon tea, but that should be cool.

2 weeks ago Mum took me to Starship 2 times - on the Wednesday my normal gastro Dr checked me out - they take off my clothes and look at my 'bits' (that's what Mum calls them), then they weigh me (I was 10.9 kg) and then they make me cry when they stretch me out in this box thing and announce I'm 84 cms long - I hate that bit. Everyone seemed pleased with me and they decided to increase my milk to 15 ml/hr for 19 hours and to reduce my TPN to 18 hours. They said I was iron deficient, so I'm booked in for a day visit on 13 June to have that put in me. I love going to Starship - everyone smiles at me, I smile at them, they shriek, then I try and talk or clap and they shriek some more.... man, adults are so easy to entertain! I don't think Mum likes going as much as I do - she mumbles something about 'car parking costing an arm and a leg'... I don't understand that as she still walks fine and can still hold me.....grown ups hey!

Then the next day Mum took me back (she mumbled again) but this time to the heart clinic.....and they did it again - the stripping me, poking me etc...but this time they also put jelly on a stick and prodded it around my heart for about 20 mins. It was gooey and I was a bit frightened, but Mum sang and leapt about a bit which distracted me - the other grown ups didn't seem to mind her strange ways, and I was happy watching her. Then they put my clothes on again, we waited some more, then we went into another room and they did it again (!) - clothes off, poking and prodding, and this time they stuck wires on my chest which was hooked up to another machine. Then we waited some more and then we went into another room and they did it AGAIN! They sure like looking at all my 'bits'. The nice Dr talked to Mum and said that they were really pleased with my heart and that 2 of the 3 things that were wrong last year were fixed! Mum looked really happy...and then the Dr said that they didn't need to see me again until I'm 5! FIVE! Really? Mum was so happy she cried when she got in the car and I heard her talk to someone that I couldn't see, thanking Him for the miracle that my heart was nearly normal and that we'd never had any long term ideas before.

Then on Friday it was pretty crazy - lots of friends showed up, everything was in boxes, then in a truck then in another house and now I have a new room with the best view ever! I can look out my window and see cars parked in the drive...wheels are my favourite-ist thing!

Then last Wednesday my nurse and Mum took me to my first every Mainly Music. It only took 2 mins to get there from our house and there were lots of other kids there. I was a bit frightened by all the noise and kids running around, so I just sort of watched.....then I saw that everyone was kind and having fun, so I tried to join in and screamed and waved my arms and legs around. After the music we all moved into another room where there was a big blue mat and all the kids sat down and were given a plate of food to eat..... but I didn't get one, I just sat with my pole and my tubes....and when I looked at Mum she looked a bit sad - sometimes she does that, but then I smile at her and she gives me a big kiss and a cuddle and it takes her sad face away. After the food time it was playtime in yet another room. I didn't like this as much as I'm used to having all my toys to myself and these other kids kept trying to grab my truck....then one of the boys wanted to take my milk line and another one was pulling on my wee wee bag! But it was ok as my nurse looked after me and explained things to the boys. Only 1 lady spoke to Mum, lots of them stared at me but then looked away, but Mum says it's ok, because sometimes people are afraid of what they don't understand or get nervous around me..... it's ok, we'll go back again tomorrow and I think people will get used to me.

The other cool thing I have to tell you about is a little bit personal - it's about my 'wee-wee machine'. I never used to be able to use it so a 'knife Dr' (that's what Mum calls a surgeon) made a little hole just above my wee-wee machine and Mum used to put a stick thing (drain) in it every 4 hours and the wee would come out. WELL, Mum doesn't have to do that anymore as I can push out my wee wees all by myself! When Mum takes off my nappy she says, 'Go Sammy, push!' and I think real hard and start to push....sometimes the girls come in and start cheering me on too.....and I push and push and then a big fountain shoots out of my 'wee-wee machine'! I laugh and clap my hands and feet together and everyone is screaming and hooting and it is really fun. Mum and Dad are so happy cos it means that the knife Dr is going to put his knife away and get out a needle and sew up the other hole! And the best bit is that Mum doesn't have to stick me with the tube anymore.

I heard Mum and Dad call me a miracle and I think they might be right. They read Psalm 29 v 6 to me, 'Praise the Lord! For he has heard my cry for mercy. The Lord is my strength, my shield from every danger. I trust in him with all my heart. He helps me, and my heart is filled with joy.' Mum and Dad are really happy, happy that I'm doing so well and happy that God has helped them get through the good and the bad of this past year.

My first birthday was very cool, but my 2nd birthday is going to be cooler, because now I can stand a little bit on my own holding something, now I am starting to talk. I'm not on oxygen anymore, my heart is strong and my wee-wee machine is working. I'm feeling really strong and happy. I have to say 'ta' whenever I want anything now, so I guess I should say a big 'ta' to all you who read this and pray for me and give me your love.

Bye bye,
Love from Sam, Sam Davy!

24 comments:

Marybeth Weber said...

Happy Birthday Sam!! This was so cool! I love the story! I'm glad he is doing well, such an inspiration!! Our urologist said Janessa may be able to pee too by pushing when she gets a bit older ;) such hope! <3 I wish many more birthday's Sam!

Marybeth & Janessa

Nicholls's said...

Sam, we love your style! What exciting and joyous news to celebrate your birthday with. Keep posting the updates if Mum & Dad are busy. Our Lord truly is an awesome God.

Angela (24B) said...

Oh Sam if you don't need to see the knife doctor anymore I won't get to see your lovely smile and hear your giggles, but I will be very happy for you! Say hello to your Mum from me xxx

Anonymous said...

Oh wow! That is great news. happy birthday Sam Davy
Love Raewyn and Andy

Crystal said...

Tears are flowing with joy! Thanks, Sam, for the update. You're quite the talker! :) Please tell your Mum, Dad, and sisters we miss them all very much here in Laos!

Tomkins said...

What a beautiful blog Sam, you nearly made me cry. Thanks for telling us all about your trip to the hospital, especially Mums dancing around, and about your heart and wee wee machine healing and the trip to Mainly music. Yes it is a miracle. Happy 2nd birthday too. Love the Tomkins family.

Maria said...

Sam, you have obviously picked up your blogging talent from your Mum! So good to hear that your heart is going well and that you can do fountains all by yourself. I hope you have a lovely 2nd birthday. Love Maria.

Anonymous said...

Happy birthday Sam! What a great storywriter you are! Maybe someday you will write a book about all your adventures! Well done mum for all the trips you take Sam on and especially for keeping smiling, singing and trusting our wonderful God for all his great mercies and miracles. Rejoicing with you and praying for God's blessing on you all, Love Alison and Murray

Elaine said...

Yay!!!!!!!!! very Cool to hear how well you are doing!
Love Taylor, Harrison & Mackenzie x

Anonymous said...

Mi chiamo Tamara Barone, mia nipote Giorgia di 3 anni ha la Sindrome di Berdon (MMIHS). Vorrei mettermi in contatto con voi per scambiare informazioni.
tamyba@yahoo.it

auguri piccolo Sam, un bacio dall'Italia

The Doughertys said...

Sammy D (thats what we call our wee sam!), you are a legend. You've just got the bestest father in the world...........hes the one who knew you before you were born, and of course He chose the bestest parents for you. Awesome, fantastic, brilliant, amazing....thank you Lord. The Dockers

Suga said...

Such GREAT news Sammy. And such fantastic writing. You had tears rolling down my cheeks! Happy birthday to Candace for today and you for the your 'birthday weekend'. Lots of love from the Vaafusuaga's (who are really glad you live in a nice warm house but REALLY miss having you around the corner!) x

Todd said...

Hello Sam and a wonderful happy birthday to you. I am so pleased to see that you are having to blow out 2 candles - I know it is double effort to blow these out over what was on your 1st birthday but wait till you get to be as old as me.

Please give a big hug to your sisters and Mom and Dad from me and maybe one day we can see you here in Canada or down there.


Lots of love

Uncle Todd (and Auntie Analynn and Teresa and Angela)

Samantha Sutherland said...

What a beautiful update! so many great things in there! I loved taking my kids to Mainly Music too and I remember sitting there with tears in my eyes as people stared at my baby with tubes attached to her but I have met many great people through M&M and I really miss it now! Happy Birthday sweet Sammy - you have come a loooong way lil fella - keep it up!

Anonymous said...

Darlingest Sam, Sam Davy!! man - you are such an awesome little man - and what a long way you've come, you've ALL come! So happy you're settling in nicely in your new home. Have a wonderful birthday! Love from viv

Alana & Madison said...

Awww what a nice blog to read! 26b is not the same without you here every few weeks, but its great to hear your doing so well. You need to come and show Madiee the tricks of how to get well and escape hospital! Lots of love to you and mom xxx
P.S Happy Birthday! xxx

Anonymous said...

Thank you for sharing where you are at...Trust that Samuel has a lovely birthday and that you can continue counting the blessings along the way. Greetings to you all. McLay family

Anonymous said...

Happy Birthday Sam - Sam Davy! we hope you have a fantastic day in your new home.Great to read your blog and how well you are doing - yay for you!
Big hugs and lots of love
from the Gore Rellies xxxxx

Anonymous said...

Brilliant news Sam!
You may not be saying lots of words yet, but your writing and typing skills are terrific!
So celebrate your 2nd birthday like a King - forget the Queen!
From Lyndal Parker in Oz

Liz Kelso said...

Hi Shirley, I met you, Ang and Sam at the other Mainly Music on Tuesday - man, your Sam is such a gorgeous kid!

When I was checking Aria's blog tonight I remembered how you'd mentioned meeting them, then clicked that that I'd read about that on their blog (a long time ago!), and so found your blog again via there.

Happy Birthday again Sam, you are such a sweet happy lil guy and I just love seeing you smiling and dancing at music!

Liz (Harry and Zac's mum)

Anonymous said...

What amazing news for you guys! I feel so happy for you. I can relate to so many things that you guys endure because it is similar to Mela. We feel like you right now- Mela has made so much progress over the last year - she's going from strength to strength like Sam. What miracle children we have and how blessed we are to have them in our lives. Take care xxx Mishla

Kate Manson said...

Yay great news Shirley, so lovely to read how well Sam is doing. We are all good, Alice turned 2 last month and has just started pre-school. May Sam continue to go from strength to strength, we will continue to send you our bestest most positive vibes from little old Temuka xox

Anonymous said...

LOVE this post... can't believe it has been two years. Sam is continuing to amaze & defy all odds! I love how God has held you guys through the good & bad days. I love reading your story & am so glad to hear the progress! Happy birthday Sam xxx Sheridan :)

bronheslop said...

Happy birthday Sam, Sam Davy! God is so good, he answers our daily prayers for you and your family. You ARE a miracle, you gorgeous boy - and you are so good at using a computer already! Keep it up, sweetheart - you're doing great! Love, Bron, Nigel, James and Ollie xxoo