Firstly this is my last week as a one year old. On Monday it is a holiday in NZ because of the Queen having a birthday, but really I think it's because it's my birthday! Mum and Dad seem a bit too tired to do much so we're just having family around on Sunday for afternoon tea, but that should be cool.
2 weeks ago Mum took me to Starship 2 times - on the Wednesday my normal gastro Dr checked me out - they take off my clothes and look at my 'bits' (that's what Mum calls them), then they weigh me (I was 10.9 kg) and then they make me cry when they stretch me out in this box thing and announce I'm 84 cms long - I hate that bit. Everyone seemed pleased with me and they decided to increase my milk to 15 ml/hr for 19 hours and to reduce my TPN to 18 hours. They said I was iron deficient, so I'm booked in for a day visit on 13 June to have that put in me. I love going to Starship - everyone smiles at me, I smile at them, they shriek, then I try and talk or clap and they shriek some more.... man, adults are so easy to entertain! I don't think Mum likes going as much as I do - she mumbles something about 'car parking costing an arm and a leg'... I don't understand that as she still walks fine and can still hold me.....grown ups hey!
Then the next day Mum took me back (she mumbled again) but this time to the heart clinic.....and they did it again - the stripping me, poking me etc...but this time they also put jelly on a stick and prodded it around my heart for about 20 mins. It was gooey and I was a bit frightened, but Mum sang and leapt about a bit which distracted me - the other grown ups didn't seem to mind her strange ways, and I was happy watching her. Then they put my clothes on again, we waited some more, then we went into another room and they did it again (!) - clothes off, poking and prodding, and this time they stuck wires on my chest which was hooked up to another machine. Then we waited some more and then we went into another room and they did it AGAIN! They sure like looking at all my 'bits'. The nice Dr talked to Mum and said that they were really pleased with my heart and that 2 of the 3 things that were wrong last year were fixed! Mum looked really happy...and then the Dr said that they didn't need to see me again until I'm 5! FIVE! Really? Mum was so happy she cried when she got in the car and I heard her talk to someone that I couldn't see, thanking Him for the miracle that my heart was nearly normal and that we'd never had any long term ideas before.
Then on Friday it was pretty crazy - lots of friends showed up, everything was in boxes, then in a truck then in another house and now I have a new room with the best view ever! I can look out my window and see cars parked in the drive...wheels are my favourite-ist thing!
Then last Wednesday my nurse and Mum took me to my first every Mainly Music. It only took 2 mins to get there from our house and there were lots of other kids there. I was a bit frightened by all the noise and kids running around, so I just sort of watched.....then I saw that everyone was kind and having fun, so I tried to join in and screamed and waved my arms and legs around. After the music we all moved into another room where there was a big blue mat and all the kids sat down and were given a plate of food to eat..... but I didn't get one, I just sat with my pole and my tubes....and when I looked at Mum she looked a bit sad - sometimes she does that, but then I smile at her and she gives me a big kiss and a cuddle and it takes her sad face away. After the food time it was playtime in yet another room. I didn't like this as much as I'm used to having all my toys to myself and these other kids kept trying to grab my truck....then one of the boys wanted to take my milk line and another one was pulling on my wee wee bag! But it was ok as my nurse looked after me and explained things to the boys. Only 1 lady spoke to Mum, lots of them stared at me but then looked away, but Mum says it's ok, because sometimes people are afraid of what they don't understand or get nervous around me..... it's ok, we'll go back again tomorrow and I think people will get used to me.
The other cool thing I have to tell you about is a little bit personal - it's about my 'wee-wee machine'. I never used to be able to use it so a 'knife Dr' (that's what Mum calls a surgeon) made a little hole just above my wee-wee machine and Mum used to put a stick thing (drain) in it every 4 hours and the wee would come out. WELL, Mum doesn't have to do that anymore as I can push out my wee wees all by myself! When Mum takes off my nappy she says, 'Go Sammy, push!' and I think real hard and start to push....sometimes the girls come in and start cheering me on too.....and I push and push and then a big fountain shoots out of my 'wee-wee machine'! I laugh and clap my hands and feet together and everyone is screaming and hooting and it is really fun. Mum and Dad are so happy cos it means that the knife Dr is going to put his knife away and get out a needle and sew up the other hole! And the best bit is that Mum doesn't have to stick me with the tube anymore.
I heard Mum and Dad call me a miracle and I think they might be right. They read Psalm 29 v 6 to me, 'Praise the Lord! For he has heard my cry for mercy. The Lord is my strength, my shield from every danger. I trust in him with all my heart. He helps me, and my heart is filled with joy.' Mum and Dad are really happy, happy that I'm doing so well and happy that God has helped them get through the good and the bad of this past year.
My first birthday was very cool, but my 2nd birthday is going to be cooler, because now I can stand a little bit on my own holding something, now I am starting to talk. I'm not on oxygen anymore, my heart is strong and my wee-wee machine is working. I'm feeling really strong and happy. I have to say 'ta' whenever I want anything now, so I guess I should say a big 'ta' to all you who read this and pray for me and give me your love.
Love from Sam, Sam Davy!