Sam's anatomy is so unusual that the radiologists just could not get the GJ out of the stomach and into the intestine. They tried about 4 different thicknesses of wire, one Dr tried for about an hour then another one joined him, but even the team effort realised it was just not going to be possible. The contrast that they inject normally floods out of the stomach and shows where the intestine was, but it was just sitting in the stomach. It was so frustrating for them but Sam was happy enough during this time, which is why they kept persevering..... but we returned to the ward with the G still intact and hopeful that if we stayed in overnight we might make the acute surgical list to have it put in under G.A.
So yesterday Sam went to theatre at around 2.30 and the Dr called at around 3.30 to say they had gotten it in quite easily under G.A. By 4 he was back on the ward sitting up and chatting as if nothing had happened! It was usuable instantly, so he was hooked up to his infinity pump and 5 ml/hour of a simple sugary/water solution to see how his new chunk of intestine would cope. I just called Francis (he stayed in overnight so I could carry on packing up the house) and he said Sam had a great night and they have increased this solution now to 10ml/hr. The plan is that he will switch over to pepti-junior (milk he was previously on) for 10ml/hr this afternoon sometime and then we can get him home! They are also re-starting some of his meds today, so our quiet month just on TPN is over and it's back to normal....... but it is progress and we are so glad he can now use this longer piece of intestine.
We have to head back in on Wednesday for the gastro team to review him and hopefully increase his rate of milk intake and then on Thursday I have to take him back in for his cardiac review....... and then Friday we move house. It's busy, but it's all progress and we're optimistic to see how Sam will cope with these changes in his internals.... he's such a great wee guy.
Thanks for your love and prayers for Sam, off to sort the girls room ready for putting it all in boxes.