He is sleeping more than usual (in the day!) and waking lots at night in pain, so we are hoping as the medicine kicks in this can swing the other way as sleep deprivation is now just a way of life, but one that we'd happily leave somewhere!
So far this week the girls have taught Sam to say, 'apple and car'. As we set the table a little voice pops up, 'amem, amem.....' and Sam is sitting grinning at us...... he knows that he gets to sit at the dinner table with us and that we hold hands and pray....and then he thinks he's the bees knees as he shouts, 'amem' at the end. It is very cute, but then I'm very biased!
It's just a normal week for us with the various health professionals in our home etc, but Friday will be a very different day - we look forward to seeing the MacDonald family again and being able to share in Aria's funeral, knowing that her departure from this world leaves much sadness for many, yet a chance to remember her short yet beautiful life.