So Sam is now not having TPN, but is rather just on a fluid solution to try and get his sodium levels down. The blood test this morning was slightly better, but not enough to convince anyone to let me escape. Tomorrow we hope to get a kidney/bladder ultrasound to see if that can shed some light and the dieticians etc will re-think his TPN. His TPN was altered a little a few weeks back, so all his inputs need to be re-looked at. I get the impression there is puzzlement due to the good condition Sam looks to be in - totally happy, looking strong and no signs of dehydration or other symptoms normally tied up with high sodium.
It's strange being back - it's been about 4 months, which is the longest we've had Sam at home in a stint.... but he is a very different boy now to look after in hospital. He wants to be out in the corridor where the action is, he hates being in his room and wants to 'walk, walk' as he points at his buggy. It's great he can communicate now, but my days of lying about reading novels whilst my baby sleeps are long gone..... I must remember to bring in my pedometer next time to see what mileage we do.
We are hoping and praying that we can get this sorted soon and get home - it was so lovely to see Sam improve last week, so this is the proverbial spanner in his works. But we are peaceful and are asking God to sort it all out and help Sam and the girls cope in the midst of this.
Thanks for your ongoing prayers and interest for our dear little man. X