Sunday, November 2, 2014

A Good Silence this time....

Sam has been so well and happy since we have been home this time - the longer course of hard core antibiotics really dealt to the bugs in his urine, so we are enjoying having clean urine and a very happy boy.  From those that I talk to that have had the sorrow of UTIs themselves, they all comment how awful they feel with them.... so its no wonder Sam is leaping about giggling and so happy - I think he must be feeling so well after 6 months of fighting uti's.

He is loving Kindergarten and being really active - wanting to climb and jump and in to everything.

Last week I had meetings with Ministry of Education about getting the school physically ready for him to start.  We are hoping that a space is ready by February when we intend him to start school.  If it isn't, he won't be able to stay at school beyond a 3 hour period, as he needs a dignified, clean and safe place to have his cares done.... so we are hoping the very slow cogs that bureaucracy seems to use, may hopefully speed up beyond the historically snails pace at which they grind.  

We also had a respiratory outpatients clinic at Starship, which was just a catch up after a winter where he needed added oxygen at various times.  He had some scans done 3 weeks ago when he was well, and it seems to show all that we had suspected.  He has a piece of damaged lung (which is always the bit that collapses) and his air way and other parts of a lung have scar tissue (from previous infections).  But as he bounded into the appointment, stripped off his clothes to show the Dr his new undies (he is out of nappies now so he is very very proud of his new status) you wouldn't have known anything was wrong.  When all is well he is charging around, but when he becomes unwell, due to this damage he quickly needs assistance.  

But for today a happy boy went to sleep to his usual song - every night before sleep he makes me sing the song I have sung over him every night since he was born... and now he lies with his eyes shut and smiling as I sing it... sometimes he joins in which is very cute.... it is Numbers 6:24-26
24 “‘“The Lord bless you
    and keep you;
25 the Lord make his face shine on you
    and be gracious to you;
26 the Lord turn his face toward you
    and give you peace.

That is our prayer for him, for Jaz & Candace..... and may it be so for you too.  X S