Oh so many changes in the past 24 hours - yes we will be in hospital for Christmas.... 50/50 chance as we have to wait and see... No you cant get home.... oh sorry Sam isn't responding to the meds so we have to increase them so you will be staying etc etc...
Then this morning our favourite urologist wandered in and was very decisive that the catheter could come out and we can can pop in tomorrow for his antibiotic 30 minute infusion, but he saw no reason we can't go home! Woo hoo - we are all very delighted after resigning ourselves to another Starship Christmas.
Sam still has debris in his urine so they have increased his dose of IV antibiotic infusion. At 4 this afternoon he will have a 'trough' - they take blood to check how the drug is affecting him, then he will be set up for his 30 minute infusion. After that we will head home in time to hook him up for his overnight TPN!
Right now as Sam plays with his cars on his hospital bed, Francis and the girls are at the movies enjoying 'Paddington' - well I'm guessing the girls are enjoying it and Francis is enjoying not being at work. Tonight we will head to a 7pm Christmas Church service and tomorrow morning we aim to have a lie in (um... well anything is longer than the 4.30 am wakes up in this place due to pumps alarming etc), a lazy family brunch and gifts and then on to more food for a Davy Christmas lunch, with a pop in to Starship for Sams infusion at 3pm. We have to have a nurse visit from Boxing Day until Dec 30 for an infusion, but this is the pay off to keep us out of hospital.
Every year the girls groan and roll their eyes when they are asking me what I want for Christmas - my answer is always the same, 'I don't want anything but to have the 5 of us together - the people I love the most'. They now parrot it back at me, but this year I truly mean it more than ever!
John 3:16 'For God so loved the world He gave His only Son, so that none would be lost but have eternal life'..... This is what we celebrate at Christmas and my heart is full as I think on that amazing truth... and whether in Starship or home, that truth is the same. We are grateful that we will all wake in the same place tomorrow as we stoop and celebrate all that God has done in giving Jesus to walk alongside us in this life.
It has been a hard year on lots of fronts - disappointing surgeries that didn't work, lots of long hospital stays, Francis' Dad has been very unwell and the challenge of work/life balance has been hard (& I failed miserably) amidst a busy family. So we crawl to Christmas weary and a bit jaded. We look forward to time to stop and breath and enjoy each other and to take stock and ensure we do what we can to make positive changes. I hope to disappear for a few days to sleep and leave Francis with the kids - I am so looking forward to this!!
I hope this holiday season you can look back at the highs and lows, spend time being refreshed with good relationships and lots of laughter, ready for the challenges of 2015.
Thank you for your care and prayers for Sam and us - X Shirl