Tuesday, December 16, 2014

Graduation!

Sam got home on Tuesday evening, after an iron infusion and a new plan around his central line care.  We now put this little disk (which is impregnated with something to kill bugs) at the entry point and then use a 'second skin'.  These dressings are amazing and are so thin but stick like glue.

So he woke up on Wednesday at home, which meant he could go to his Kindergarten Christmas party and graduation!  He was such a star - he was shepherd and managed to stay focused and do the right things for the duration - no mean feat when there are around 100 kids in various stages of nativity dress-up with a medley of songs.  It was truly a delight to see them all in action and I felt quite emotional as he 'graduated'.  Such a milestone for our little man and we are so indebted to the love and care of the team at Elim Kindergarten who have nurtured and loved Sam.

I'm afraid the photos aren't great as I forgot my camera and only had my iphone. He is the cute shepherd in the middle!

He has been doing great at home, until Saturday when his urine turned to custard, so we popped into Starship with a spec on Saturday.  He has grown an e-coli, but they are unsure which strain, so we are monitoring symptoms with extra bladder wash-outs and daily gentamycin bladder wash outs too.  It does sound so boring as I read what I write.... just more of the same, but we value your prayers and hope that with info you can understand a little.

Again this year he is not in love with the large white bearded fellow, so won't be any cute pics of him with Santa any time soon.  I may try to record his screaming for you!  

He is going to have another trial morning at school, before school closes on Thursday.

I leave you with his 'graduation' photo - on the last day of school the child is presented with their graduation cap, which he wore with such pride all day!  So he is off on another adventure next year - to a big school, with Ange his faithful carer moving on with him as his Teacher Aide. She truly is a God send and a very dear woman that has become a part of our family and especially Sams life.

10 days to go before we celebrate the coming of Jesus -we are loving the season and the reason and enjoying being home doing simple things.  May you all be able to relax and breath and enjoy some quiet this Christmas.


2 comments:

Anonymous said...

Fantastic. What a wonderful story to end the year.
Love Raewyn and Andy

Jo Pelan said...

I love, love, love the photo of Sam as a shepherd! What a gorgeous boy and what an amazing milestone for him to be graduating kindy! I've been reading your blogs but usually on my phone and I haven't been able to figure out how to comment, so I haven't. But we think of him and pray for him often, and one of these days we will hopefully be able to come and visit you all! I just wrote your Christmas card - are you still in Heathridge Place or is that an old address?
Jo