Monday, October 19, 2015

A weekend to remember!

So much happened this past week:

1.  Sam gained a brother and named him Sammy James Junior (more on that below)
2.  We ran a stall at the Otara Markets and made $661.60 for Starship (Woohoo!)
3.  We exercised like never before at PEAK FOR LIFE and raised $560 yesterday (Double woohoo!).

Firstly meet Sammy James Junior.  He landed from the UK on Saturday at 3:58 pm, weighing in at about 1 kg.  He has thick dark hair, olive skin and stomas just like Sam. His accent varies according to whose hand is up his jumper, but it's been amazing to see Sam come to life and communicate with this little guy with the same tubes as he has.  We are so grateful to the volunteers at PNDU in Australia who made this happen for the under 10 year old kids on TPN in Austr/NZ.  Truly Sammy Jnr is going to be a fabulous tool to work with Sam. Just tonight Candace was working Sammy Jnr and asked Sam if he had eaten food today.  Sam said no, then Sammy Jnr said, 'I think I might try and lick some food tomorrow, would you like to try with me?.  Sam is open to anything when his 'brother' suggests it - and yes this power has already been abused by his siblings who were quick to figure out how to make it work for them!





2.  If people watching is your thing, then the Otara Markets is a weekly event that is such a fun vibrant place to hang out and a must for you!  If the sun was shining, you could have been mistaken for thinking you were in the islands somewhere with the sounds, smells and sights.... but we were there selling clothes that had kindly been donated to us from a merchandiser.  They were all new garments/samples of clothes and we had a busy stall.  Candace also stood around with a Starship bucket and people were very generous to give (& yes my 12 year old is as tall as me!).


Sunday saw us up shouting and yahooing at our TV set like most of NZ. The All Black win was a good dose of euphoria which would help us with our Peak For Life challenge at Sunday at 11.  About 30 people came - gym members and extras and we had 3 teams with full on boot-camp type challenges.  It was lots of fun, heaps of energy expended and I have to say that my legs are killing me today!  Running just uses the same muscles, but flipping tractor tyres up and down hills, running up hills to hang on a school playground etc uses a whole different set!  It was a great morning and so appreciative of all those that turned up.  Another $560 raised for Starship.

Tomorrow Sam and I head in to Starship for 11am.  He is on the afternoon list for a broncoscopy, which requires a GA.  They plan to biopsy his lungs, take a look and see what state they are in and also do some chest xrays - basically find out what is going on and see if the pseudemonas is clearing.  He still is on twice daily abx nebulisers and seems to be doing well.  Last week his oxygen testing over night showed he had good saturation, so we are hopeful things are looking good. Depending on how he copes with the GA we may get home or may need to stay in.

Thursday night is our movie night and the tickets are selling really well. We still have a few tickets if you want to come, so you can message me or call Peak For Life to book a spot.  

Hoping you all have a good week and I will update you post procedure and post movie night!


Then it will only be 1 week to the actual run! Due to hospital I need to get up early and run 2 hours tomorrow before we go in to keep on schedule.... am hoping for rain/gales or isolated tornado.... but if not, I will just get out there and pound the pavements!

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