He is a remarkable little boy, who has endured much.
He did have a variety of visitors in the weekend - cousin, Nana, Aunties and a special friend from Tauranga - I only managed to snap one of them!
Over the weekend Sams Octreotide was stopped - this was the 24 hour medicine (given IV) which was used to help slow down the production of fluids in the lymphatic system. His breathing has seemed to be fine since this change, but his ilieostomy outputs (liquid poo) has gone from around 500 ml - 1500 ml/24 hours. Today I am sure this will be reviewed.
Sam was giggling and chatting as I spoke with him last night and had perked up. Sam has told me I need to bring in needle and thread and fix Bees nose - Bee is due for his third Rhinoplasty - the bees nose is hanging by a thread - literally been loved off!
We dare to hope that maybe Sam could come home by the end of this week?