Monday, August 1, 2016

Waiting... waiting,.... waiting....

Sam has spent the week in hospital, largely waiting for the MRI. Monday and Tuesday passed, with 'hopefully tomorrow' for Wednesday... then the MRI machine broke down, so then possibly Thursday afternoon he could head to the adult MRI machine.  Finally on Friday at 3pm he was wheeled over to Auckland Public Hospital for his MRI.

It was performed under G.A. and he woke back in Starship post op recovery.  At this stage no report has been made and no feedback, so we hope maybe tomorrow there will be some news.

Before the procedure Sam, with the help of the nurse, Francis and Sam's wheelchair, wandered the ward. This was the first time out of his room in 5 weeks! He wandered wide and far chatting to all his subjects and making sure all was in order - he is quite the character!  

                                                        Dr Davy doing his Ward Round!

Sam had some visitors this week, which cheered him up no end! The Principal and Deputy Principal from his school popped in - so kind of them and he loved seeing them and putting together a new garage!  He also had visits from:  Hannah and her Mum, Nana (x 2!), his favourite nurses, Paul, Phil and Larissa - and others that I may have missed because Francis was with Sam and I was with the girls (sorry if I missed you!).  I don't normally list all that appear in his room, but I think because this admission has been particularly isolating, he has really enjoyed seeing people.

Tonight Francis has texted to say Sam has spiked a 38.9 temp, which is a set back - something is brewing, so they will send away samples from all the various bits and see where/what germs and how to treat it.  I am concerned about the chest drain which has been in for over 3 weeks and the site is looking a bit in need of a clean.  

Tomorrow he was potentially having an exploratory surgery (where they pop a camera down into his chest), but that may not be happening now, as the surgeon is waiting for MRI results.  I'm guessing with a temp, they also will be hesitant to operate.

Today I go to bed grateful for my beautiful family whom I love deeply, It's not easy living a broken life in hospital.  It's hard on relationships when time is pressured.  Tomorrow when I wake I am conscious it is a new day.  I read Psalm 119 in the Message Version: 'What you say goes, God, and stays, as permanent as the heavens. Your truth never goes out of fashion; it's as up-to-date as the earth when the sun comes up. Your Word and truth are dependable as ever' then it goes on to say ' I see the limits to everything human, but the horizons can't contain your commands!'  

The above fills me with hope - Sams current medical situation is unknown and people are unsure - peoples brains are reaching their limits, but I believe there are answers and ideas and help for Sam, which is why we pray.  I also believe that no matter how hard our lives are, there is something truly joyful in knowing that when the sun comes up God is with me to sustain me.

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