Saturday, March 18, 2017

CT Scan

Yesterday Sam was a superstar!  He had a CT Scan appointment at Middlemore Hospital - the orthopaedic Dr had ordered it, as they want to see if his unusual gait/poor hip rotation is due to a bone anomaly or if it is a soft tissue issue. The Dr told me that if it is a soft tissue issue, rigorous and ongoing physio work can help with that.  I dared to ask what was the plan if it showed that it wasn't a soft tissue issue?  At this point I think it's fair to let you in on a hospital joke that is whispered along the corridors by parents and medics alike.  I was never good at jokes and I forget most of it, but the punchline was along the lines of 'Surgeons and Anaethetists relate best to unconscious people'.  So with that in mind, I will tell you his response to my question.  Without changing his manner, tone of voice etc he said in a very steady calm voice, 'oh it's a relatively easy fix,, we just break both femurs, insert metal rods.......' and I didn't actually hear the rest as I was so aghast at the statement he had casually deposited in my lap!  I think I muttered something about let's just hope it's soft tissue then and not make any plans until we see what the CT Scan reveals.

So yesterday Sam and I went in to the room with the giant donut - Sam was very verbal in the fact that he was scared.  It is a big machine and also in a room that is very 'hospital'.  I told him 2 things - that Uncle Pete can do this kind of thing and he would be so proud of Sam if he could do it too and we could call him after the scan and they could compare notes!  This settled him and he allowed the guy to tape his feet and legs together.  Then they lay the blanket over him and with giant velcro straps they tied him to the bed.  This was another point he was screaming and scared and I went delivered  my second statement/blackmail here -  'if you are really good and lie still we will go to the shop on the way home and you can buy a new car!  Well that worked a treat.  I stayed in the room with him and he had a few verbal wobbles as the machine started whirring and then again as the bed moved in and out of the donut... but mostly he was absolutely brilliant. Trusty Bee was at his side and I chatted and sang to him the whole time.  7 minutes he lay perfectly still - I was so impressed with him.  This was the first time he has done something like this without anaestetic.  As soon as it was over he was of course reminding me of my 2 promises and I think he reminded me about 32 times between the end of the scan and actually stopping at the shop to buy the car.  My memory is getting bad as I get older, but Sam was taking no chances!



On Wednesday we were in Starship for an hour with a child psychologist.  He will be having 5 sessions over the next 5 weeks for 1 hour at a time.  He has one-on-one with his new friend and they play and chat and she assesses how he is doing.  This programme is often done with children at this age who have lived with chronic health issues. Sam has been vocalising more and more how he wants to 'rip out my tubes' and 'he hates his mitrofonoff' etc.  So it will be good to hear her feedback after the sessions to see what we can do to help him cope with his challenges.  As always the physical challenges are significant, but things of the heart are harder to quantify and treat and definitely more significant and impacting on his life at his age/stage.

Hsi UTI  has cleared (yay!), but he is sounding a bit chesty and sneezing a bit, so am making sure we are doing his chest physio twice a day and keeping a tabs on what bugs are at school.

I leave you with a photo of him with his new AA membership card - he was telling his Aunty Elaine all about it,.... if only she could have seen down the phone! I know there is skype, but we were just using a landline phone - gosh, feels very last century.....




Thanks for keeping in touch with the little man!
Shirl

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